Bill C-280, An Act to establish a national strategy for Chronic Cerebrospinal Venous Insufficiency (CCSVI) in Canada, has been brought up by 13 Canadian CCSVI advocacy groups in a letter to letter to provincial health ministers Stephen Harper and Leona Aglukkaq. The letter challenges the Canadian government’s claim that they have already carried out what Bill C-280 requires.
The groups involved, their numbers and leaders are:
CCSVI Ontario (441) – Linda Hume-Sastre
CCSVI-IVCC (629) – Francine Deshaies/Christopher Alkenbrack
CCSVI in MS Nova Scotia (1,312) – Maxine David
CCSVI in MS Toronto (3,192) – Wayne Feaver
CCSVI Brockville (138) – Amy Gaylord-Preston
CSVI Kingston (50) – Lauri Leach
Bruce Peninsula & District Multiple
Sclerosis Liberation Association (461) – Keith Hepburn
CCSVI Saskatchewan (711) – Val Hoenecke
CCSVI Calgary (1,146) – Bernie Delorme
CCSVI Costa Mesa/Newport Beach (559) – Michelle Walsh
CCSVI Society of Alberta (2,127) – Warren Stefanuk
CCSVI Vancouver (535) – Jenna Machala
CCSVI in BC Information FB page (3,100) – Shara Grice
The letter states that “while the Government is claiming that most of what is required in Bill C-280 is already under way, this is absolutely not the case…”.
The main areas of concern are CCSVI follow up, CCSVI tracking, the relevance of proposed clinical trials in Canada, whether there will be enough participants and where funding is going to come from.
The tracking issue is important as Canadians with MS who have been treated for CCSVI will not be tracked until about July 2012, which means that up to two and a half years of data will be lost.
Angeles hospital
Angeles Health is Mexico’s largest private hospital network and providers CCSVI treatment. We track our patients’ progress with regular follow ups, questionnaires and subsequent testing. To learn more about our world class facility and some of the excellent results we have had please get in touch with us using the form on the right.